BBC radio host, 48, with rare lung condition 'ready to fight'

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Former BBC Radio 1 presenter, 48, who suffers from a rare lung condition reveals she is waiting for a lifesaving transplant and says she is ‘ready to fight’ the disease

  • Former Radio 1 host Bethan Elfyn, from Penarth, has a rare lung condition 
  • She has been on the waiting list for a potentially lifesaving transplant for years
  • Mother-of-two, from Penarth in Wales, said she is ‘ready to fight’ the illness

A former BBC Radio 1 host said she is ‘ready to fight’ as she waits for a potentially lifesaving lung transplant.

Mother-of-two Bethan Elfyn, 48, from Penarth, has a rare lung condition called sarcoidosis, which causes small patches of swollen tissue to develop in parts of the body.

For Bethan, this affects her lungs – and she has been on a waiting list for two and a half years for a potentially lifesaving transplant.

The presenter has now spoken out about the condition, and confessed she is most worried about her two daughters – aged 10 and five, saying:  ‘The kids, family, I think that’s the hardest thing. 

‘Gosh, it’s human nature, isn’t it? To fear, you feel for yourself. But more than that you fear for the people who you leave.’ 

Mother-of-two Bethan Elfyn, 48, has a rare lung condition called sarcoidosis, which causes small patches of swollen tissue to develop in parts of the body

Mother-of-two Bethan Elfyn, 48, has a rare lung condition called sarcoidosis, which causes small patches of swollen tissue to develop in parts of the body

Bethan has told how it took her'a good few years' to come to terms with her illness, which means she had to wear an oxygen tank to help her breathe

Bethan has told how it took her ‘a good few years’ to come to terms with her illness, which means she had to wear an oxygen tank to help her breathe 

Bethan has told how it took her ‘a good few years’ to come to terms with her illness, which means she had to wear an oxygen tank to help her breathe. 

She said: ‘I’m currently on the transplant waiting list for new lungs. 

‘Yep! Not an easy journey at all and it’s taken a good few years to come to terms with this truth, (let alone the general chaos we have lived with in the last few years).

‘I’m ok – keeping positive, living life as fully as I can, still going to festivals, still travelling, still working, still on the radio (just), but expecting some twists and turns ahead. 

The BBC host has vowed to'fight' and live life as normally as possible despite the challenges of her condition

The BBC host has vowed to ‘fight’ and live life as normally as possible despite the challenges of her condition 

Bethan has told how it took her'a good few years' to come to terms with her illness, which means she had to wear an oxygen tank to help her breathe

Bethan has told how it took her ‘a good few years’ to come to terms with her illness, which means she had to wear an oxygen tank to help her breathe

What is sarcoidosis?

Bethan Elfyn has a lung condition called sarcoidosis, which can affect other parts of the body.

It is a rare condition that causes small patches of swollen tissue, called granulomas, to develop in organs.

it is most often found in the lungs and lymph nodes, but can also affect the skin.

Source: NHS

‘Hoping to share the journey with you.’ 

Bethan previously co-hosted Radio 1 on Thursday nights with Huw Stephens. 

She now works as a presenter and producer for BBC Radio Wales.

She said that if and when a donor is found an operation will still not be a guaranteed success but says she will ‘journal’ her progress along the way.

She said: ‘It’s stressful, it’s painful, it’s gonna be a super worry, I could die. 

‘And if I don’t die in the operation, I could die within a few months because the organ could be rejected.

‘The percentage rates of success are so low but at the same time I could be healthy, it could go really well and I could live life to the full again and run up Snowdon.’

Meanwhile she added she plans to ‘fight’ the disease and confessed she is feeling ‘resilient’ about her future. 

She added: ‘People talk about resilience and bravery… I honestly don’t feel brave, but I do feel resilient.

‘I feel like I am ready to fight and I’m ready to kind of keep going. You’ve got to.’

Meanwhile the mother-of-two added she plans to'fight' the disease and confessed she is feeling'resilient' about her future

Meanwhile the mother-of-two added she plans to'fight' the disease and confessed she is feeling'resilient' about her future

Meanwhile the mother-of-two added she plans to ‘fight’ the disease and confessed she is feeling ‘resilient’ about her future

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